Tag: Rare Diseases

Rare Disease day

28 February RARE DISEASE DAY – Position statement

As Coordinators of the 24 European Reference Networks (ERNs), we stand together and united with our 900 strong members (healthcare providers) and the patient community, in the fight against rare diseases. Rare diseases are indiscriminate in nature and do...
eUROGEN is approved by the European Commission

eUROGEN is approved by the European Commission

After an extensive assessment, we are pleased to announce that eUROGEN, the European Reference Network (ERN) for rare and complex urogenital diseases and conditions, was officially launched during the 3rd conference on European Reference Networks in Vilnius, Lithuania 9-10...